“54 YEARS LATE” is a short film that tells the gut-wrenching true-life story of Terry Gene Wright, a 58-year-old African American man who was not diagnosed with Cystic Fibrosis (CF) until the age of 54 despite being seen by an array of healthcare practitioners, enduring countless hospitalizations and surgeries, and having all the classic symptoms of CF – a progressive and genetic disease that’s often perceived to affect only the Caucasian population. Written and directed by Michele Wright, Ph.D., and produced by Butterbean Productions, this movie emotionally depicts Terry’s roughly 5 ½-decade painful and surreal journey from childhood to adulthood to finally being diagnosed with CF “54 YEARS LATE”!
Michele Wright, Ph.D. is the recipient of the Nations of Women Change Makers 2021 Global Leadership Award. She is the co-founder and board chair of the National Organization of African Americans with Cystic Fibrosis (NOAACF), a 501(c)(3) organization with a mission to engage, educate, and raise cystic fibrosis (CF) awareness in the African-American community in an effort to help bring valuable resources, knowledge, empowerment, and support to CF patients, families, healthcare professionals, and the community.
Dr. Wright also co-founded and co-chairs the annual BIOMERGD (Blacks, Indigenous, and Other Minority Ethnicities with Rare and Genetic Diseases) Conference and led the development of a Cystic Fibrosis screening tool to help individuals self-identify symptoms that could be related to CF and doctors potentially identify individuals with CF, including individuals who are black, indigenous and people of color (BIPOC).
My life mantra is “The Best Is Yet to Come,” which is my passion to extend towards helping and positively impacting underserved and underrepresented populations worldwide for not only today but for generations to come!